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Palliative Care Information & Guidance

Resources on Palliative Care Information and Guidance. Click on the download icon to download. 

Early Identification Prototype Briefing Paper [PDF]

This paper was prepared to give the Palliative Care in Partnership Programme Board members an update on the Early Identification Prototype which was commenced in Primary Care.

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Initial Findings Phase 1 Early Identification Prototype Briefing Paper 2 [PDF]

This paper was prepared to give the Palliative Care in Partnership Programme Board members and other stakeholders an update on the initial findings from phase one of the Early Identification Prototype which was commenced in Primary Care.

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End of Life Care Operational System (ELCOS) 2017 [PDF]

This is an A4 PDF diagram of the End of Life Care Operational System (ELCOS).

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Prompts to aid ELCOS [PDF]

This is a 2 page A4 PDF which shows prompts to aid practitioners in the development of an individualised care plan. Updated 2017.

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Palliative Care Aide Memoir [PDF]

This is a 3 page a A4 PDF with prompts to be used when assessing and reviewing patients with palliative care needs across conditions. Based on NISAT domains.

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Palliative Hub Learning Platform

This word document gives information on the Palliative Hub – Learning Platform which has been designed to provide an online learning environment for professionals and the public. It is one of five components that make up The Palliative Hub.

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Guidance for the Management of Symptoms in Adults in the Last Days of Life (RPMG 2023) [PDF]

This  guidance relates to the prescribing of medicines to manage symptoms for patients in the last days of life.

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Guidance of the Management of Symptoms in Adults with Heart Failure at the End of Life [PDF]

This booklet provides guidance to healthcare professionals on managing commonly experienced symptoms for heart failure patients in the last weeks to days of life. Updated 2025.

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NI Guidance for the Management of Diabetes in Adults during the Last Days of Life [PDF]

Guidance to healthcare professionals on managing Diabetes in Adults during the Last Days of Life. Updated 2025. 

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Department of Health Complete Guide for Carers 2020 [PDF]

This guide is for informal/unpaid carers living in Northern Ireland. This guide tells you where you can access information, support and services relevant to carers.

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Practical Care for Dying Person Toolkit [PDF]

This is a 2 page a4 PDF with information on what you can do to practically care for someone who is in their last days and hours of life.

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Comfort Care Booklet NI [PDF] 

This is a guide for family and friends to providing comfort care to people with dementia during their last days of life.

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Widening Access to Palliative and End of Life Care for People with Intellectual Disabilities [PDF]

This is an evidence-based, open access, online resource with a strong service user perspective, which aims to promote optimal palliative and end of life care for people with intellectual disabilities in any care setting.

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Regional SPC Referral Guidance Service Directory [PDF]

This is Information on when and where to refer a person with Specialist Palliative Care needs for community and inpatient Specialist Palliative Care Services

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Advance Care Planning Summary [WORD DOC]

This is a template to record discussions regarding a person’s wishes and preferences for care at the end of life. 

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When illness affects your appetite [ONLINE PDF]

Information and guidance on nutrition and management of illness affecting appetite.  

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Swallowing Information for End of Life by Swallow Aware, PHA, HSC. [PDF]
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Nourishing Drinks Recipe Ideas [PDF]
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How to Use Oral Nutritional Supplements [PDF]
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Guidance for Appropriate Prescribing of Oral Nutritional Supplements in Palliative Care [PDF]

This guidance is intended to help Health Care Professionals support nutritional needs of people including supplements.

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Northern Ireland Medicines Management Newsletter Supplement [PDF]

Nutritional Needs of Specific Patient Groups

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